Become a Champion for Our Rare Disease Community

General
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Thank you for being an essential part of our Ben’s Friends community. Today, I want to invite you to take your support a step further by becoming a fundraiser for our “Friends Helping Friends” campaign.

What does it mean to be a fundraiser?

As a fundraiser, you create your own personal fundraising page and share it with your network. It’s a powerful way to amplify our message and reach more people who may want to support our rare disease communities.

The Impact of Sharing Your Story

Your personal experience with rare disease is unique and powerful. By sharing your story as a fundraiser, you can:

  • Help others understand the challenges of living with a rare disease
  • Raise awareness about the importance of support communities (like Ben’s Friends)
  • Inspire others to contribute to a cause that has directly impacted your life

Setting Up Your Fundraising Page is Easy:

  1. Visit our campaign page
  2. Click “Become a Fundraiser” and Register
  3. Set a fundraising goal (we suggest starting with $500)
  4. Add your personal story and a photo
  5. Share your page with friends and family

To help make your fundraising easy, we have also provided several resources like sample emails, sample social media posts, and tips for becoming a better fundraiser.

You can check this all out on our Friends Helping Friends page.

Remember, your efforts make a real difference. Every dollar raised helps us:

  • Maintain and grow our 40+ online communities for rare diseases
  • Launch new communities for underserved conditions
  • Provide vital information and emotional support to thousands of patients and families

If you need any help setting up your fundraising page or have questions, please check out our Fundraising Toolkit or reach out by replying right here.

We’re here to support you every step of the way.
Together, we can make a real difference for those affected by rare diseases!

Thank you for considering this opportunity to make an even bigger impact in our rare disease community.

Warm regards,

Ben’s Friends Team

P.S. Don’t forget to check out our Fundraiser Toolkit for more tips and resources to help you succeed!

@trust_level_0

1 Like
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I have autism so don’t like sharing my photo for fundraiser, I’m celiac as well and so is my one twin, the other has ADHD
From other support group I may have audHd which autism and ADHD but son keeping me to busy to decide.

I find this forum is very slow as in posts are from years ago, seems not much is happening, meant as constructive criticism not saying anything bad.